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DUETs UK Database of Uncertainties about the Effects of Treatments (UK DUETs): A resource to help prioritise new research

 

Bibliography: Musculoskeletal diseases

 

Studies documenting the research questions and outcome measures which patients and clinicians rate as important

See list for all health topics

Abma TA (2005). Patient participation in health research: research with and for people with spinal cord injuries. Qualitative Health Research 15: 1310-1328. Pubmed

 

Anderson KD (2004). Targeting recovery: Priorities of the spinal cord-injured population. Journal of Neurotrauma 21: 1371-1383. Pubmed

 

Anon (1990). Epidural anaesthesia and long term backache after childbirth. British Medical Journal 301: 385-386. Pubmed

 

Bakker C, Van Der Linden S, Van Santen Hoeufft M, Bolwijn P, Hidding A (1995). Problem elicitation to assess patient priorities in ankylosing spondylitis and fibromyalgia. Journal of Rheumatology 22 (7): 1304 - 1310. Pubmed

 

Bellamy N, Kirwan J, Boers M, Brooks P, Strand V, Tugwell P, Altman R, Brandt K, Dougados M, Lequesne M (1997). Recommendations for a core set of outcome measures for future phase III clinical trials in knee, hip, and hand osteoarthritis. Consensus development at OMERACT III. Journal of Rheumatology 24: 799-802. Pubmed

 

Chard J, Tallon D, Dieppe P (2000). Epidemiology of research into interventions for the treatment of osteoarthritis of the knee joint. Annals of the Rheumatic Diseases 59: 414-418. Pubmed

 

Estores IM (2003). The consumer's perspective and the professional literature: what do persons with spinal cord injury want?... "Translational Research in Spinal Cord Injury: Avoiding Potential Pitfalls", 3 April 2003 in Miami, Florida. Journal of Rehabilitation Research and Development 40, 93-98. Pubmed

 

Fraenkel L, Bogardus ST, Concato J, Wittink DR, Sequist TD (2004). Patient preferences for treatment of knee osteoarthritis. Journal of Clinical Outcomes Management 11: 485-486.

 

Gulick EE (1996). Research priorities for nurses caring for persons with multiple sclerosis. Nursing Research Speciality Group of the Consortium of Multiple Sclerosis Centers. The Journal of Neuroscience Nursing 28: 314-321. Pubmed

 

Heiberg T, Kvien T (2002). Preferences for improved health examined in 1,024 patients with rheumatoid arthritis: pain has highest priority. Arthritis and Rheumatism 47: 391-397. Pubmed

 

Jette AM (1989). Future priorities for the AHPA Research Program. Arthritis Care and Research 2: 37-39. Pubmed

 

Kilgore KL, Scherer M, Bobblitt R, Dettloff J, Dombrowski DM, Godbold N, Jatich JW, Morris R, Penko JS, Schremp ES, Cash LA (2001). Neuroprosthesis consumers' forum: consumer priorities for research directions. Journal of Rehabilitation Research and Development 38: 655-660. Pubmed

 

Kirwan J, Heiberg T, Hewlett S, Hughes R, Kvien T, Ahlmen M, Boers M, Minnock P, Saag K, Shea B, Almazor MS, Taal E (2003). Outcomes from the Patient Perspective Workshop at OMERACT 6. Journal of Rheumatology 30: 868-872. Pubmed

 

Kirwan JR, Ahlmen M, de Wit M, Heiberg T, Hehir M, Hewlett S, Katz PP, Minnock P, Quest EM, Richards P (2005). Progress since OMERACT 6 on including patient perspective in rheumatoid arthritis outcome assessment. Journal of Rheumatology 32: 2246-2249. Pubmed

 

Kirwan JR, Hewlett SE, Heiberg T, Hughes RA, Carr M, Hehir M, Kvien TK, Minnock P, Newman SP, Quest EM, Taal E, Wale J (2005). Incorporating the patient perspective into outcome assessment in rheumatoid arthritis--progress at OMERACT 7. The Journal of Rheumatology 32: 2250-2256. Pubmed

 

Knig HH (2004). (Measuring preferences of psychiatric patients). Psychiatrische Praxis 31: 118-127.

 

Knudson CM (1984). What are the research priorities in the behavioral areas for burn patients? Journal of Trauma 24: S197-S202.

 

Kvien TK, Heiberg T (2003). Patient perspective in outcome assessments--perceptions or something more? The Journal of Rheumatology 30: 873-876. Pubmed

 

Kwoh CK, Ibrahim SA (2001). Rheumatology patient and physician concordance with respect to important health and symptom status outcomes. Arthritis and Rheumatism 45: 372-377. Pubmed

 

MacDermid JC, Fess EE, Bell-Krotoski J, Cannon NM, Evans RB, Walsh W, Szabo RM, Laseter G, Mackin E, Gettle K, Santore G, American Hand Therapy Foundation Board of Directors (2002). A research agenda for hand therapy. Journal of Hand Therapy 15: 3-15. Pubmed

 

Palmer CS, Schmier JK, Snyder E, Scott B (2000). Patient preferences and utilities for 'off-time' outcomes in the treatment of Parkinson's disease. Quality of Life Research 9: 819-827. Pubmed

 

Prosser LA, Kuntz KM, Bar-Or A, Weinstein MC (2003). Patient and community preferences for treatments and health states in multiple sclerosis. Multiple Sclerosis 9: 311-319. Pubmed

 

Ratcliffe J, Buxton M, McGarry T, Sheldon R, Chancellor J (2001). Patients' preferences for characteristics associated with treatments for osteoarthritis. Rheumatology 43: 337-345.

 

Rothwell PM, McDowell Z, Wong C K, Dorman PJ (1997). Doctors and patients don't agree: cross sectional study of patients' and doctors' perceptions and assessments of disability in multiple sclerosis. British Medical Journal 1997; 314: 1580-1583. Pubmed

 

Saag KG (2003). OMERACT 6 brings new perspectives to rheumatology measurement research. Journal of Rheumatology 30: 639-641. Pubmed

 

Salmond SW (1994). Orthopaedic nursing research priorities: a Delphi study. Orthopaedic Nursing 13: 31-45. Pubmed

 

Sangeorzan BJ, Beskin JL, Britt SM, Brage M, Holt S, Kadel NJ, Legro MW, Sands AK, SooHoo NF, Stroud CC (2005). Issues of importance to patients seeking care from members of the AOFAS: a preliminary report of the outcomes committee of the AOFAS. Foot and Ankle International 26: 638-644. Pubmed

 

Somerset M Peters TJ, Sharp DJ, Campbell R (2003). Factors that contribute to quality of life outcomes prioritised by people with multiple sclerosis. Quality of Life Research 12: 21-29. Pubmed

 

Stamm T, Machold K, Alteaha D, Stucki G, Smolen J (2006). Clinical outcome measures in hand osteoarthritis from the patient perspective. Zeitschrift fur Rheumatologie 65: 139-143. Pubmed

 

Tallon D, Chard J, Dieppe P (2000). Relation between agendas of the research community and the research consumer. Lancet 355: 2037-2040. Pubmed

 

Tallon D, Chard J, Dieppe P (2000). Exploring the priorities of patients with osteoarthritis of the knee. Arthritis Care and Research 13: 312-319. Pubmed

 

Tosteson AN (2000). Preference-based health outcome measures in low back pain. Spine 25: 3161-3166. Pubmed

 

Vernon W (2005). A Delphi exercise to determine current research priorities in podiatry. British Journal of Podiatry 8: 11-15.

 

Weiss TW, Gold DT, Silverman SL, McHorney CA (2006). An evaluation of patient preferences for osteoporosis medication attributes: Results from the PREFER-US study. Current Medical Research and Opinion 22: 949-960. Pubmed

 

Wu J, Bezjak A, Chow E, Cross P, Genest P, Grant N, Kirkbride P, Roy I, Whelan T, Fitzgibbon E, Wong R (2003). A consensus development approach to define national research priorities in bone metastases: proceedings from NCIC CTG workshop. Clinical Oncology 15: 496-499. Pubmed

 

Xie F, Li SC, Fong KY (2006). What health domains and items are important to patients with knee osteoarthritis? A focus group study in a multiethnic urban Asian population. Osteoarthritis and Cartilage 14: 224-230. Pubmed